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Showing posts from July, 2016

An Exception to the Rule

Hey All, It's that time again...time to write about one of our amazing kids here at SFCV. Typically, I've been trying to write about my patients/ the kids enrolled in our therapy program. So far it's been good and I'm very happy to say that the word is getting out about these kiddos! Today's post is an exception to the rule... this incredibly special young girl isn't in our therapy program, she's never been enrolled in our program, but she is definitely a huge part of our hearts! Amanda joined our SFCV family from Heze orphanage in February of 2014, and every since our hearts and lives have been touched by her loving and joyful heart. Amanda has Blue Bleb Nevus Syndrome (BRBNS) which is a rare condition that is characterized by numerous malformations of the venous system that primarily effects  the skin and visceral organs. This condition has caused her to have a left foot deformity as well as several of these venous abnormalities. Last summer our medica